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LIVING WITH STARGARDTS DISEASE
Loretta's Story - Written by her husband, Greg
My wife has been
diagnosed with Stargardt's since 1992. She and her
father went to NIH and participated in a brief
national study. Both had the same degree
degeneration. My wife received a very complicated
therapy lens treatment by Dr. Roy Wesley, from Chicago
for ten years. Her father did not. Her fathers eyes
deteriorated to such a degree that he eventually
became almost "dark". My wife's therapy allowed her
to continue to not only see, but actually improved her
vision so that she could read without any glasses.
The clinic that Dr. Wesley practiced in went out of
business in 2001 and she no longer was able to get
treatment. We will forever be grateful to Dr. Wesley
for the ten years of treatment he provided Loretta.
After two years of no treatment her eyes began
deteriorating. Doctors gave us no hope and it was
very discouraging. In October of 2003, we read an
article about a Dr. Nolan who was having some success
treating patients with Stargardt's. We made an
appointment and went to visit him the second week of
December. His examination indicated she had
Stargardt's and had vision of 20/200. He treated her
with some eye drops on Thursday night and on Friday
morning she could see without glasses. She could read
the paper and the tests confirmed that her vision had
improved to 20/30. It was a miracle. Her father
could actually see the TV and read the big print on
the bottom of the screen.
The procedure has not been approved by the FDA yet,
and Dr. Nolan is hoping to get it approved and
accepted by the medical community. He is one private
practice doctor who may have found, not a cure because
if you stop taking the drops the condition returns,
but a treatment that offers hope we have not had in
many years.
His name is:
After the treatment we did not know how to thank him.
He asked only one thing from us - to pray that he had
the stamina to continue his efforts and to ask people
to pray for approval by the FDA and the medical
community so that more people could receive this
blessing.
I encourage you to review his website and notify
others that there may be hope for some people when so
many doctors have told us there was not hope.
Greg Falk
E-mail: greg9636@yahoo.com
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